Top Family Support Tips

Content provided by: United Cerebral Palsy of New York City

Family support departments and agencies offer many valuable services to parents and caregivers. Below are just some of the useful tips to consider when thinking about family support.

  • You know your child’s needs best; ask around for what you need.
  • Don’t be afraid to ask other parents; many have looked for the same assistance as you.
  • Join a support group of caregivers just like you, either locally in your area or on the internet. Online communities offer a great place to start.
  • Get on mailing lists and join local parent groups that support the interest of persons with developmental disabilities. Start by using our Resource Locator to find your local provider of Early Intervention Services or NICHCY’s State Resource Sheets.
  • As you consider Family Support program options, keep a notebook of all the contacts you make. Read tips on calling agencies for more help in getting the most out of your time.
  • Keep a list, with copies, of all the critical information about your child. List items including: likes and dislikes, favorite activities, daily routines, family rituals and of course, critical medical information and emergency contact information. This information will be helpful to any workers that assist in your home. Our Helpful Forms can help you organize this information.
  • If you have staff working in your home, be very clear about the roles and responsibilities of all parties. Again, be direct about what you hope to have accomplished with the service they are providing. Ask questions and become familiar with what staff can and cannot do in the household. For example, most staff are not allowed to provide care for siblings and can only assist the person with a disability.
  • Ask to have a home evaluation to see if there are modifications that could be made to make life easier for daily care giving. These can be completed by Occupational Therapists trained especially for the home.
  • Take good care of yourself; know that it is OK to accept assistance from friends and family members.

Find Support

Looking for more tips?

Visit the My Child Without Limits support community and talk to fellow parents, caregivers, and experts.

Resources:

Are you looking for resources to help your child?

Check out our Resource Locator to find the government and non-government agencies that can provide the services that your child needs.