Rett Syndrome Prognosis

The path  and timeline of Rett syndrome, including the age when it begins and how severe the symptoms are, changes from child to child. However, even though the symptoms may cause problems, it is believed many people who have Rett syndrome can live into middle age and possibly beyond. While it is estimated that there are many middle-aged women (in their 40s and 50s) with the disorder, not enough women have been studied to make dependable estimates about life expectancy beyond age 40.

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Cleveland Clinic